Heart Failure Care Facilitators and Barriers in Rural Haiti: A Qualitative Study

Gene F. Kwan; Elizabeth Basow; Benito D. Isaac; Darius L. Fenelon; Evyrna Toussaint; Dawson Calixte; Michel Ibrahim; Lisa R. Hirschhorn; Mari-Lynn Drainoni; Alma Adler; Mary A. Clisbee; Gene Bukhman

doi:10.5334/aogh.4521

Heart Failure Care Facilitators and Barriers in Rural Haiti: A Qualitative Study

Volume 90 (2024): Issue 1

By: Gene F. Kwan , Elizabeth Basow, Benito D. Isaac , Darius L. Fenelon, Evyrna Toussaint , Dawson Calixte , Michel Ibrahim , Lisa R. Hirschhorn , Mari-Lynn Drainoni , Alma Adler , Mary A. Clisbee and Gene Bukhman

Open Access

|Sep 2024

Roth GA, Mensah GA, Johnson CO, et al. Global burden of cardiovascular diseases and risk factors, 1990–2019: Update from the GBD 2019 study. J Am Coll Cardiol. 2020;76(25):2982–3021. doi:10.1016/j.jacc.2020.11.010.
Open DOI Search in Google Scholar Back to article
Institute for Health Metrics and Evaluation (IHME). Haiti Profile. Seattle, WA: Institute for Health Metrics and Evaluation, University of Washington; 2019. Available from: http://www.healthdata.org/haiti.
Search in Google Scholar Back to article
Kwan GF, Jean-Baptiste W, Cleophat P, et al. Descriptive epidemiology and short-term outcomes of heart failure hospitalization in rural Haiti. Heart. 2016;102(2):140–146. doi:10.1136/heartjnl-2015-308451.
Open DOI Search in Google Scholar Back to article
Malebranche R, Tabou Moyo C, Morisset P-H, Raphael N-A, Wilentz JR. Clinical and echocardiographic characteristics and outcomes in congestive heart failure at the Hospital of The State University of Haiti. Am Heart J. 2016;178:151–160. doi:10.1016/j.ahj.2016.06.001.
Open DOI Search in Google Scholar Back to article
Kwan GF, Bukhman AK, Miller AC, et al. A simplified echocardiographic strategy for heart failure diagnosis and management within an integrated noncommunicable disease clinic at district hospital level for sub-Saharan Africa. JACC Heart Fail. 2013;1(3):230–236. doi:10.1016/j.jchf.2013.03.006.
Open DOI Search in Google Scholar Back to article
Kwan GF, Mayosi BM, Mocumbi AO, et al. Endemic cardiovascular diseases of the poorest billion. Circulation. 2016;133:2561–2575. doi:10.1161/CIRCULATIONAHA.116.008731.
Open DOI Search in Google Scholar Back to article
Damasceno A, Mayosi BM, Sani M, et al. The causes, treatment, and outcome of acute heart failure in 1006 Africans from 9 countries. Arch Intern Med. 2012;172:1386–1394. doi:10.1001/archinternmed.2012.3310.
Open DOI Search in Google Scholar Back to article
Eberly LA, Rusingiza E, Park PH, et al. Understanding the etiology of heart failure among the rural poor in Sub-Saharan Africa: A 10-year experience from district hospitals in Rwanda. J Card Fail. 2018;24(12):849–853. doi:10.1016/j.cardfail.2018.10.002.
Open DOI Search in Google Scholar Back to article
Yan LD, Sufra R, St Sauveur R, et al. Spectrum of prevalent cardiovascular diseases in urban Port-au-Prince, Haiti: A population-based cross-sectional study. Lancet Reg Health – Americas. 2024;33:100729. doi:10.1016/j.lana.2024.100729.
Open DOI Search in Google Scholar Back to article
Kingery JR, Roberts NL, Lookens Pierre J, et al. Population-based epidemiology of heart failure in a low-income country: The Haiti Cardiovascular Disease Cohort. Circ Cardiovasc Qual Outcomes. 2023;16:e009093. PMID 36472189. doi:10.1161/CIRCOUTCOMES.122.009093.
Open DOI Search in Google Scholar Back to article
Ditewig JB, Blok H, Havers J, van Veenendaal H. Effectiveness of self-management interventions on mortality, hospital readmissions, chronic heart failure hospitalization rate and quality of life in patients with chronic heart failure: A systematic review. Patient Educ Couns. 2010;78(3):297–315. doi:10.1016/j.pec.2010.01.016.
Open DOI Search in Google Scholar Back to article
Siabani S, Leeder SR, Davidson PM. Barriers and facilitators to self-care in chronic heart failure: A meta-synthesis of qualitative studies. Springerplus. 2013;2:320. doi:10.1186/2193-1801-2-320.
Open DOI Search in Google Scholar Back to article
Jeon YH, Kraus SG, Jowsey T, Glasgow NJ. The experience of living with chronic heart failure: A narrative review of qualitative studies. BMC Health Serv Res. 2010;10:77. doi:10.1186/1472-6963-10-77.
Open DOI Search in Google Scholar Back to article
Riegel B, Carlson B. Facilitators and barriers to heart failure self-care. Patient Educ Couns. 2002;46:287–295. doi:10.1016/s0738-3991(01)00165-3.
Open DOI Search in Google Scholar Back to article
Kimani KN, Murray SA, Grant L. Multidimensional needs of patients living and dying with heart failure in Kenya: A serial interview study. BMC Palliat Care. 2018;17(1):28. doi:10.1186/s12904-018-0284-6.
Open DOI Search in Google Scholar Back to article
Naanyu V, Vedanthan R, Kamano JH, et al. Barriers influencing linkage to hypertension care in Kenya: Qualitative analysis from the LARK Hypertension study. J Gen Intern Med. 2016;31:304–314. doi:10.1007/s11606-015-3566-1.
Open DOI Search in Google Scholar Back to article
Khatib R, Schwalm J-D, Yusuf S, et al. Patient and healthcare provider barriers to hypertension awareness, treatment and follow up: A systematic review and meta-analysis of qualitative and quantitative studies. PloS one. 2014;9:e84238. doi:10.1371/journal.pone.0084238.
Open DOI Search in Google Scholar Back to article
Govindasamy D, Ford N, Kranzer K. Risk factors, barriers and facilitators for linkage to antiretroviral therapy care: A systematic review. AIDS. 2012;26(16):2059–2067. doi:10.1097/QAD.0b013e3283578b9b.
Open DOI Search in Google Scholar Back to article
Jones R. Strength of evidence in qualitative research. J Clin Epidemiol. 2007;60(4):321–323. doi:10.1016/j.jclinepi.2006.06.001.
Open DOI Search in Google Scholar Back to article
Jerome G, Ivers LC. Community health workers in health systems strengthening: A qualitative evaluation from rural Haiti. AIDS (London, England). 2010;24(Suppl 1):S67–S72. doi:10.1097/01.aids.0000366084.75945.c9.
Open DOI Search in Google Scholar Back to article
Bronfenbrenner U. Toward an experimental ecology of human development. Am Psychol. 1977;32(7):513–531. doi:10.1037/0003-066X.32.7.513.
Open DOI Search in Google Scholar Back to article
Alkire S, Foster J. Counting and multidimensional poverty measurement. J Public Econ. 2011;95(7–8):476–487. doi:10.1016/j.jpubeco.2010.11.006.
Open DOI Search in Google Scholar Back to article
Blot V, Cayemittes M, Charles E, et al. Enquête Mortalité, Morbidité et Utilisation des services (EMMUS-VI) 2016–2017. Pétion-Ville, Haïti; 2018.
Search in Google Scholar Back to article
Harris PA, Taylor R, Thielke R, Payne J, Gonzalez N, Conde JG. Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inform. 2009;42:377–381. doi:10.1016/j.jbi.2008.08.010.
Open DOI Search in Google Scholar Back to article
Polit DF, Beck CT. Supplement for Chapter 14: Qualitative descriptive studies. In: Essentials of Nursing Research: Appraising Evidence for Nursing Practice. Philadelphia, PA: Wolters Kluwer Health; Lippincott Willians & Wilkins; 2009.
Search in Google Scholar Back to article
Neergaard MA, Olesen F, Andersen RS, Sondergaard J. Qualitative description - the poor cousin of health research? BMC Med Res Methodol. 2009;9:52. doi:10.1186/1471-2288-9-52.
Open DOI Search in Google Scholar Back to article
Kwan GF, Yan LD, Isaac BD, et al. High poverty and hardship financing among patients with noncommunicable diseases in rural Haiti. Glob Heart. 2020;15(1):7. doi:10.5334/gh.388.
Open DOI Search in Google Scholar Back to article
World Health Organization, Panamerican Health Organization. Culture et Santé Mentale en Haïti: une Revue de Littérature. Geneva, Switzerland: World Health Organization; 2010.
Search in Google Scholar Back to article
Ware NC, Idoko J, Kaaya S, et al. Explaining adherence success in sub-Saharan Africa: An ethnographic study. PLoS Med. 2009;6(1):e11. doi:10.1371/journal.pmed.1000011.
Open DOI Search in Google Scholar Back to article
Global Hunger Index. A closer look at hunger and undernutrition in Haiti - Country case studies. 2019. Available from: https://www.globalhungerindex.org/case-studies/2019-haiti.html.
Search in Google Scholar Back to article
Hearn J, Pham Q, Schwartz JI, et al. Lived experiences and technological literacy of heart failure patients and clinicians at a cardiac care centre in Uganda. Ann Glob Health. 2020;86(1):85. doi:10.5334/aogh.2905.
Open DOI Search in Google Scholar Back to article
Holtzman CW, Shea JA, Glanz K, et al. Mapping patient-identified barriers and facilitators to retention in HIV care and antiretroviral therapy adherence to Andersen’s Behavioral Model. AIDS Care. 2015;27(7):817–828. doi:10.1080/09540121.2015.1009362.
Open DOI Search in Google Scholar Back to article
Tomori C, Kennedy CE, Brahmbhatt H, et al. Barriers and facilitators of retention in HIV care and treatment services in Iringa, Tanzania: The importance of socioeconomic and sociocultural factors. AIDS Care. 2014;26(7):907–913. doi:10.1080/09540121.2013.861574.
Open DOI Search in Google Scholar Back to article
Moshabela M, Bukenya D, Darong G, et al. Traditional healers, faith healers and medical practitioners: The contribution of medical pluralism to bottlenecks along the cascade of care for HIV/AIDS in Eastern and Southern Africa. Sex Transm Infect. 2017;93:1–5. doi:10.1136/sextrans-2016-052974.
Open DOI Search in Google Scholar Back to article
Lyimo RA, de Bruin M, van den Boogaard J, Hospers HJ, van der Ven A, Mushi D. Determinants of antiretroviral therapy adherence in northern Tanzania: A comprehensive picture from the patient perspective. BMC Public Health. 2012;12:716. doi:10.1186/1471-2458-12-716.
Open DOI Search in Google Scholar Back to article
Wessinger MH, Hennink MM, Kaiser BN, et al. Retention in HIV care depends on patients’ perceptions of the clinic experience. AIDS Care. 2017;29(10):1212–1217. doi:10.1080/09540121.2017.1308465.
Open DOI Search in Google Scholar Back to article
Watt MH, Maman S, Earp JA, et al. “It’s all the time in my mind”: Facilitators of adherence to antiretroviral therapy in a Tanzanian setting. Soc Sci Med. 2009;68(10):1793–1800. doi:10.1016/j.socscimed.2009.02.037.
Open DOI Search in Google Scholar Back to article
Hardon AP, Akurut D, Comoro C, et al. Hunger, waiting time and transport costs: Time to confront challenges to ART adherence in Africa. AIDS Care. 2007;19(5):658–665. doi:10.1080/09540120701244943.
Open DOI Search in Google Scholar Back to article
Raymondville M, Rodriguez CA, Richterman A, et al. Barriers and facilitators influencing facility-based childbirth in rural Haiti: A mixed method study with a convergent design. BMJ Glob Health. 2020;5(8):e002526. doi:10.1136/bmjgh-2020-002526.
Open DOI Search in Google Scholar Back to article
Zanolini A, Sikombe K, Sikazwe I, et al. Understanding preferences for HIV care and treatment in Zambia: Evidence from a discrete choice experiment among patients who have been lost to follow-up. PLoS Med. 2018;15(8):e1002636. doi:10.1371/journal.pmed.1002636.
Open DOI Search in Google Scholar Back to article
Malow RM, Rosenberg R, Devieux JG. Introduction to special section on HIV/AIDS and substance use in the Caribbean (Part 1). J Int Assoc Physicians AIDS Care (Chic). 2011;10(4):246–247. doi:10.1177/1545109711415529.
Open DOI Search in Google Scholar Back to article
Chang AY, Nabbaale J, Nalubwama H, et al. Motivations of women in Uganda living with rheumatic heart disease: A mixed methods study of experiences in stigma, childbearing, anticoagulation, and contraception. PloS one. 2018;13(3):e0194030. doi:10.1371/journal.pone.0194030.
Open DOI Search in Google Scholar Back to article
Sterlin C. Pour une approche interculturelle du concept de santé. Ruptures, Revue Transdisciplinaire en Santé. 2006;11:112–121.
Search in Google Scholar Back to article
Farmer P. AIDS and Accusation: Haiti and the Geography of Blame. Berkeley, CA: University of California Press; 2006.
Search in Google Scholar Back to article
Desrosiers A, St Fleurose S. Treating Haitian patients: Key cultural aspects. Am J Psychother. 2002;56(4):508–521. doi:10.1176/appi.psychotherapy.2002.56.4.508.
Open DOI Search in Google Scholar Back to article
Vonarx N. Vodou, illness and models in Haiti: From local meanings to broader relations of domination. Anthropol Action. 2008;14(3):18–29. doi:10.3167/aia.2007.140304.
Open DOI Search in Google Scholar Back to article
Love KR, Karin E, Morogo D, et al. “To speak of death is to invite it”: Provider perceptions of palliative care for cardiovascular patients in Western Kenya. J Pain Symptom Manage. 2020;60(4):717–724. doi:10.1016/j.jpainsymman.2020.05.003.
Open DOI Search in Google Scholar Back to article
Kim H, Sefcik JS, Bradway C. Characteristics of qualitative descriptive studies: A systematic Review. Res Nurs Health. 2017;40(1):23–42. doi:10.1002/nur.21768.
Open DOI Search in Google Scholar Back to article

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DOI: https://doi.org/10.5334/aogh.4521 | Journal eISSN: 2214-9996

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Language: English

Submitted on: Jul 18, 2024

Accepted on: Sep 1, 2024

Published on: Sep 25, 2024

Published by: Ubiquity Press

In partnership with: Paradigm Publishing Services

Publication frequency: 1 issue per year

Keywords:

Haiti,

© 2024 Gene F. Kwan, Elizabeth Basow, Benito D. Isaac, Darius L. Fenelon, Evyrna Toussaint, Dawson Calixte, Michel Ibrahim, Lisa R. Hirschhorn, Mari-Lynn Drainoni, Alma Adler, Mary A. Clisbee, Gene Bukhman, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.

Volume 90 (2024): Issue 1