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A Population Health Approach to Address the Burden of Congenital Heart Disease in Kerala, India Cover

A Population Health Approach to Address the Burden of Congenital Heart Disease in Kerala, India

Open Access
|Oct 2021

Figures & Tables

Figure 1

CHD Patient Care Continuum.

Figure 2

Kerala Pediatric Cardiac Care: Situation Analysis 2016 and 2019.*

* Some private centers in the initial assessment were not empaneled (selected) by the government and later either discontinued their pediatric cardiac services or closed completely.

Figure 3

Congenital Heart Disease Demographics in Kerala, 2016.

CHD: Congenital Heart Disease; est.: estimated.

Figure 4

Kerala Capacity to Address CHD, 2016.

Table 1

Challenges and Interventions within the Pediatric Cardiac Care Continuum in Kerala (see text for details).

ChallengesInterventions Undertaken
Recognition
  • Limited awareness & expertise in fetal echocardiography

  • Lack of newborn pulse oximetry screening & equipment

  • Medical professionals inadequately trained to recognize CHD

  • Little public concern for CHD

  • Obstetric ultrasound training

  • Neonatal pulse oximetry program established

  • Neonatal nurses perform pre-discharge physicals

  • Pediatricians trained for early recognition

  • Public awareness IEC campaign

Diagnosis & Prioritization
  • Spotty or nonexistent processes for assessment of suspected cases

  • Hridyam requires remote review & triage within 24 hours

Referral
  • Lack of an organized system to prioritize and refer patients to a treatment center causing dangerous delays

  • Immediate referrals, with diagnosis & geography considered

Stabilization and Transport
  • Limited understanding of how to stabilize sick infants with heart disease

  • Absence of a neonatal transport network to get babies safely to a treatment center

  • Transport network developed by the government

  • Web-based transport app now in pilot testing

Advanced Pediatric Heart Tertiary Care
  • Limited public-sector capacity to treat cCHD

  • Limited access to private-sector capacity

  • Expansion of public-sector capacity at 3 institutions

  • Collaboration with private sector in an effectively integrated system

Follow up care
  • No standardization or public health drivers of postoperative follow-up

  • Follow-up protocols developed and integrated within Hridyam

  • Nursing group tasked with postop in-home follow-up visits

Figure 5

Hridyam Process Map.

Table 2

Hridyam Patient Registrations.

YearAge 0–12 monthsAge > 1 yearTotal
2017 (Aug–Dec)309193502
201814097812190
2019223710223259
Total395519965951
Table 3

Hridyam Patient Surgical Profile.

AgeYearNumber of Cases (proportion %)Most Frequent Procedures
Under 1 month201717 (8.2)
201883 (13.3)
2019166 (13.5)
Total266 (12.9)Arterial switch, Patent Ductus Arteriosus (PDA) stent, Total Anomalous Pulmonary Venous Connection repair
1 month to1 year201799 (47.6)
2018306 (49.0)
2019614 (50.0)
Total1,019 (49.5)Ventricular Septal Defect (VSD) repair, Tetralogy of Fallot repair, PDA device
Over1 year201792 (44.2)
2018235 (37.7)
2019447 (36.4)
Total774 (37.6)Atrial Septal Defect (ASD) device, ASD repair, PDA device
Table 4

Hridyam Surgical Outcomes.

YearSurgical Cases≤30-day Mortality (% of cases)Late Mortality(% of cases)
2017 (Aug–Dec)2083 (1.4)4 (1.9)
201862422 (3.5)21 (3.4)
20191,22725 (2.0)19 (1.5)
Total2,05950 (2.4)44 (2.1)
Figure 6

Reduction in all-cause and CHD-related infant mortality following the introduction of Hridyam programs in Kerala. By the non-parametric Mann Whitney U test, this improvement is of borderline statistical significance (p = 0.06), probably due to the small sample size of comparing data from two Hridyam years to four pre-Hridyam years.

DOI: https://doi.org/10.5334/gh.1034 | Journal eISSN: 2211-8179
Language: English
Submitted on: Mar 17, 2021
Accepted on: Sep 22, 2021
Published on: Oct 18, 2021
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year

© 2021 Sreehari M. Nair, Bistra Zheleva, Adriana Dobrzycka, Peter Hesslein, Rajeev Sadanandan, R. Krishna Kumar, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.