Figure 1
Five-Step Registry Development Process with ICRR Activities.
Legend: * Based on Mandavia et al. [43] and AHRQ’s 4th edition Registry User’s Guide{Formatting Citation}.
CR = cardiac rehabilitation, ICRR = International Cardiac Rehabilitation Registry.
Figure 2
ICRR Governance organization chart.
Legend: ICCPR = International Council of Cardiovascular Prevention and Rehabilitation, ICRR = International Cardiac Rehabilitation Registry.
Incl., including; pt, patient, co., committee, exec., executive.
Table 1
Initial variable list with overall ratings and inclusion decisions.
| VARIABLE NUMBER IN DATA DICTIONARY (PROGRAM SURVEY) | VARIABLE NAME (ASSESSMENT POINT) | OVERALL RATING MEAN ± STANDARD DEVIATION | INCLUSION DECISION |
|---|---|---|---|
| 1 | Year of birth ǁ (pre) | 6.7 ± 0.7 | I |
| 2 | Sex ǁ (pre) | 6.8 ± 0.4 | I |
| 4 | Referral diagnoses (pre) | 6.7 ± 0.6 | I |
| 5 | Referral intervention(s) (pre) | 6.5 ± 0.8 | I |
| Referral date* | 6.0 ± 1.0 | E | |
| 3 | Initial assessment date (pre) | 6.2 ± 0.9 | I |
| 7, 27, 29 | Interim event(s)/procedures/vital status* (post) | 6.0 ± 0.8 | R |
| 7 | Premature program termination/Program Completion‡ (post) | 6.4 ± 0.9 | I |
| (28, 29) | Number of prescribed exercise sessions | 6.2 ± 1.0 | P |
| 6 | Number of completed exercise sessions‡ (post) | 6.4 ± 0.8 | I |
| (25) | Resistance training | 6.2 ± 0.9 | P |
| (25) | Education provided | 6.4 ± 0.8 | P |
| (25) | Stress management provided | 6.1 ± 0.9 | P |
| (25) 23 | Cardiac medications†‡˄ | 6.7 ± 0.7 | P, R |
| 8 | Low-density lipoprotein˄ (pre, post, annual) | 6.2 ± 1.2 | I |
| 9 | Waist circumference*‡˄ (pre, post, annual) | 5.9 ± 1.1 | R |
| 10 | Systolic blood pressure‡˄ (pre, post, annual) | 6.4 ± 0.7 | I |
| 10 | Diastolic blood pressure˄ (pre, post, annual) | 6.4 ± 0.7 | I |
| 11 | Peak METs‡ (pre, post) | 6.1 ± 1.0 | I |
| 13 | Marital status* (pre) | 5.6 ± 1.3 | R† |
| 14 | Educational attainment* (pre) | 6.0 ± 1.1 | I† |
| 24 | Work status (pre, post, annual) | 6.1 ± 0.9 | I† |
| 15 | Comorbidities (pre) | 6.4 ± 0.6 | I† |
| 16 | Economic security* (pre) | 5.6 ± 1.1 | R† |
| 17 | Medication coverage* (pre) | 5.8 ± 1.3 | R† |
| – | Health literacy* | 5.9 ± 1.1 | E |
| 18 | Quality of life‡˄ (pre, post, annual) | 6.1 ± 0.8 | I† |
| 19 | Depressive symptoms˄ (pre, post, annual) | 6.3 ± 0.7 | I† |
| 20 | Fruit and vegetable consumption*‡˄ (pre, post, annual) | 6.0 ± 0.8 | I† |
| – | Processed food consumption* | 5.3 ± 1.0 | E |
| 21 | Physical activity‡˄ (pre, post, annual) | 6.1 ± 1.3 | I† |
| 22 | Tobacco use‡ (pre, post, annual) | 6.8 ± 0.5 | I† |
| 25 | Cardiac knowledge‡˄ (post) | 6.1 ± 1.0 | I† |
| – | Program satisfaction* | 5.9 ± 0.9 | E |
| 26 | Cardiac rehabilitation model (post) | 6.1 ± 1.0 | I† |
[i] I, included; E, excluded, R, revised, P, moved to program survey (one time).
* Discussed during consensus call.
† Patient report.
ǁ Mandatory variables.
‡ Included in ICRR dashboards.
˄ Included in patient lay summary.
Table 2
Indicators selected for ICRR dashboards based on variables chosen by Delphi panelists.
| PROGRAM-RELATED | VARIABLE #† | PATIENT-RELATED§ | VARIABLE #† | |
|---|---|---|---|---|
| 1 | Proportion of patients completing the program (i.e., attended post-program assessment) [45]. | 7 | Change in minutes of moderate or vigorous-intensity physical activity per week from pre- to post-program. | 21 |
| 2 | Change in peak METs from pre- to post-program. | 11 | Change in number of servings of fruits and vegetables per day from pre- to post-program. | 20 |
| 3 | Change in systolic blood pressure from pre- to post-program. | 10 | Change in mean quality of life score from pre- to post-program. | 18 |
| 4 | Change in body mass index from pre- to post-program. | 9 | Proportion of patients knowing what to do if they have chest pain post-program. | 25 |
| 5 | Change in % of patients reporting current tobacco use from pre- to post-program. | 22 | Proportion of patients knowing how to control their lipids post-program. | 25 |
| 6 | Number of supervised CR sessions attended*. | 6 | Mean medication adherence (1–5) post-program. | 23 |
[i] ICRR = International Cardiac Rehabilitation Registry.
* Not compared to other sites, as number prescribed varies by program; only compared to own program first 6 months in ICRR versus after 6 months.
† As per data dictionary found in Appendix 2.
§ Shown in Figure 3.
Note: Exclusions not shown, but are available from the corresponding author.
Figure 3
ICRR Patient-Related Indicator Reporting Dashboard.
Legend: ICRR = International Cardiac Rehabilitation Registry.
Note: Dummy data are shown.