Figure 1.
Map of care transition interviews with participants over time.
Figure 2.
Emerging qualitative themes.
Table 1.
Coding chart for theme 1—‘Missing Crucial Conversations’.
| Quote | Meaning unit | Condensed meaning unit | Category |
|---|---|---|---|
| “They gave me a slip yesterday saying you’re going to be discharged on [date]. That’s it you know. The hell with you, whether you want to or not or whether you feel you’re capable. Now I know they can’t leave it up to the person themselves because some of them would stay in here forever. But I think there should be some communication between the person that’s involved and maybe say, “What do you think about going at such and such a time? Do you feel that you’re making enough progress?” And I guess, not that I’m patting myself on the back, but I think I would be smart enough to give them the right answer…” | “But I think there should be some communication between the person that’s involved and maybe say, “What do you think about going at such and such a time? Do you feel that you’re making enough progress?” | Communication between patient and health care providers | Lack of communication |
| “There’s more to health than just physical health. There’s that feeling of support, of not being a—well just another fish in the pond. I guess that’s the way I’m feeling here. You’re just another fish in the pond. And when they come along with the hook they’ll pull you up and if you’re trout they’ll put you one place, and if you’re…they’ll put you another place, and if you’re pike, they’ll put you another place.” | “I guess that’s the way I’m feeling here. You’re just another fish in the pond. And when they come along with the hook they’ll pull you up and if you’re trout they’ll put you one place, and if you’re…they’ll put you another place, and if you’re pike, they’ll put you another place.” | Feeling like just another fish in the pond | Lack of autonomy |
| “It’s challenging enough when you’ve got three adults in three different locations with busy lives. It’s challenging enough to keep the information flowing when it flows smoothly, but when it’s not kind of flowing then it really becomes challenging and can create some family tension.” | It’s challenging enough to keep the information flowing when it flows smoothly, but when it’s not kind of flowing then it really becomes challenging and can create some family tension.” | Challenging to keep information flowing | Feeling uninformed |