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Development and Validation of an Instrument for Assessing Patient Experience of Chronic Illness Care Cover

Development and Validation of an Instrument for Assessing Patient Experience of Chronic Illness Care

Open Access
|Aug 2016

References

  1. Murray CJ Vos T Lozano R Naghavi M Flaxman AD Michaud C Disability-adjusted life years (DALYs) for 291 diseases and injuries in 21 regions, 1990–2010: a systematic analysis for the Global Burden of Disease study 2010 Lancet 2012 380 9859 2197 2223 10.1016/S0140-6736(12)61689-4
  2. Tinetti ME Fried TR Boyd CM Designing health care for the most common chronic condition-multimorbidity The Journal of the American Medical Association 2012 307 23 2493 2494 10.1001/jama.2012.5265
  3. Nuño R Coleman K Bengoa R Sauto R Integrated care for chronic conditions: the contribution of the ICCC Framework Health Policy 2012 105 1 55 64 10.1016/j.healthpol.2011.10.006
  4. McGlynn EA Asch SM Adams J Keesey J Hicks J DeCristofaro A The quality of health care delivered to adults in the United States The New England Journal of Medicine 2003 348 26 2635 2645 10.1056/NEJMsa022615
  5. Bengoa R Transforming health care: an approach to system-wide implementation International Journal of Integrated Care 2013 13 3 10.5334/ijic.1206
  6. Ham C The ten characteristics of the high-performing chronic care system Health Economics, Policy and Law 2010 5 Pt 1 71 90 10.1017/S1744133109990120
  7. Wagner EH Austin BT Von Korff M Organizing care for patients with chronic illness The Milbank Quarterly 1996 74 4 511 544 10.2307/3350391
  8. Coleman K Austin BT Brach C Wagner EH Evidence on the Chronic Care Model in the new millennium Health Affairs (Millwood) 2009 28 1 75 85 10.1377/hlthaff.28.1.75
  9. Martínez-González NA Berchtold P Ullman K Busato A Egger M Integrated care programmes for adults with chronic conditions: a meta-review International Journal for Quality in Health Care 2014 26 5 561 570 10.1093/intqhc/mzu071
  10. Davy C Bleasel J Liu H Tchan M Ponniah S Brown A Effectiveness of chronic care models: opportunities for improving healthcare practice and health outcomes: a systematic review BMC Health Services Research 2015 15 15 10.1186/s12913-015-0854-8
  11. Cramm JM Nieboer AP High-quality chronic care delivery improves experiences of chronically ill patients receiving care International Journal for Quality in Health Care 2013 25 6 689 695 10.1093/intqhc/mzt065
  12. Doyle C Lennox L Bell D A systematic review of evidence on the links between patient experience and clinical safety and effectiveness BMJ Open 2013 3 1 10.1136/bmjopen-2012-001570
  13. Glasgow RE Wagner EH Schaefer J Mahoney LD Reid RJ Greene SM Development and validation of the Patient Assessment of Chronic Illness Care (PACIC) Medical Care 2005 43 5 436 444 10.1097/01.mlr.0000160375.47920.8c
  14. Vrijhoef HJ Berbee R Wagner EH Steuten LM Quality of integrated chronic care measured by patient survey: identification, selection and application of most appropriate instruments Health Expectations 2009 12 4 417 429 10.1111/j.1369-7625.2009.00557.x
  15. Singer SJ Friedberg MW Kiang MV Dunn T Kuhn DM Development and validation of the Patient Perceptions of Integrated Care Survey Medical Care Research and Review 2012 70 2 143 164 10.1177/1077558712465654
  16. Singer SJ Burgers J Friedberg M Rosenthal MB Leape L Scheneider E Defining and measuring integrated patient care: promoting the next frontier in health care delivery Medical Care Research and Review 2011 68 1 112 127 10.1177/1077558710371485
  17. National Quality Board Improving experience of care: Our shared understanding and ambition 2015 Jan London NHS [cited 2016 31 Jan]. Available from: https://www.england.nhs.uk/wp-content/uploads/2015/01/improving-experiences-of-care.pdf
  18. World Health Organization WHO global strategy on people-centred and integrated health services 2015 Mar Geneva WHO [cited 2016 31 Jan]. Available from: http://www.who.int/servicedeliverysafety/areas/people-centred-care/global-strategy/en/
  19. Coulter A After Bristol: putting patients at the centre BMJ 2002 324 7338 648 651 10.1136/bmj.324.7338.648
  20. Walker KO Labat A Choi J Schmittdiel J Stewart AL Grumbach K Patient perceptions of integrated care: confused by the term, clear on the concept International Journal of Integrated Care 2013 13 1 e004 10.5334/ijic.985
  21. Nuño-Solinís R Fernández-Cano P Mira-Solves JJ Toro-Polanco N Contel JC Guilabert-Mora M Development of an instrument for the assessment of chronic care models Gaceta Sanitaria 2013 27 2 128 134 10.1016/j.gaceta.2012.05.012 [in Spanish]
  22. Mira JJ Nuño-Solinís R Fernández-Cano P Toro-Polanco N Contel JC Guilabert-Mora M Readiness to tackle chronicity in Spanish health care organisations: a two-year experience with the Instrumento de Evaluación de Modelos de Atención ante la Cronicidad/Assessment of Readiness for Chronicity in Health Care Organisations instrument International Journal of Integrated Care 2015 15 4 10.5334/ijic.1849
  23. Berwick DM Nolan TW Whittington J The triple aim: care, health, and cost Health Affairs (Millwood) 2008 27 3 759 769 10.1377/hlthaff.27.3.759
  24. The Evidence Centre for National Voices Enhancing experience. Summarising evidence from systematic reviews 2014 Mar London National Voices [cited 2016 31 Jan]. Available from: http://www.nationalvoices.org.uk/node/1335
  25. Batalden M Batalden P Margolis P Seid M Armstrong G Opipari-Arrigan L Coproduction of healthcare service BMJ Quality & Safety 2016 25 7 509 517 10.1136/bmjqs-2015-004315
  26. Orueta JF Garcia-Alvarez A Garcia-Goni M Paolucci F Nuno-Solinis R Prevalence and costs of multimorbidity by deprivation levels in the Basque Country: a population based study using health administrative databases PloS One 2014 9 2 10.1371/journal.pone.0089787
  27. Drewes H van Til-de Jong J Struijs J Baan C Tekle F Meijboom B Measuring chronic care management experience of patients with diabetes: PACIC and PACIC+ validation International Journal of Integrated Care 2012 12 8 10.5334/ijic.862
  28. Beattie M Murphy DJ Atherton I Lauder W Instruments to measure patient experience of healthcare quality in hospitals: a systematic review Systematic Reviews 2015 4 97 10.1186/s13643-015-0089-0
  29. Cramm JM Nieboer AP The importance of productive patient–professional interaction for the well-being of chronically ill patients Quality of Life Research 2015 24 4 897 903 10.1007/s11136-014-0813-6
  30. Cramm JM Jolani S van Buuren S Nieboer AP Better experiences with quality of care predict well-being of patients with chronic obstructive pulmonary disease in the Netherlands International Journal of Integrated Care 2015 15 2 10.5334/ijic.1587
  31. Wensing M Vingerhoets E Grol R Feedback based on patient evaluations: a tool for quality improvement? Patient Education and Counseling 2003 51 2 149 153 10.1016/S0738-3991(02)00199-4
  32. McDonald RP The dimensionality of tests and items British Journal of Mathematical Statistical Psychology 1981 34 1 100 117 10.1111/j.2044-8317.1981.tb00621.x
  33. Hair JF Anderson RE Tatham RL Black WC Multivariate data analysis 1998 5th edition New York Prentice Hall International
  34. Terwee CB Bot SD de Boer M van der Windt DA Knol DL Dekker J Quality criteria were proposed for measurement properties of health status instruments Journal of Clinical Epidemiology 2007 60 1 34 42 10.1016/j.jclinepi.2006.03.012
  35. Bagozzi RP Yi Y On the evaluation of structural equation models Journal of the Academy of Marketing Science 1988 16 1 74 94 10.1007/BF02723327
  36. Nunnally JC Bernstein H Psychometric theory 1994 3rd edition New York McGraw-Hill
  37. LaVela SL Gallan AS Evaluation and measurement of patient experience Patient Experience Journal 2014 1 1 28 36 Available from: http://pxjournal.org/journal/vol1/iss1/5
  38. Jha AK Orav EJ Zheng J Epstein AM Patients’ Perception of Hospital Care in the United States The New England Journal of Medicine 2008 359 1921 1931 10.1056/NEJMsa0804116
  39. Groene O Arah OA Klazinga NS Wagner C Bartels PD Kristensen S Patient Experience Shows Little Relationship with Hospital Quality Management Strategies PLoS One 2015 10 7 10.1371/journal.pone.0131805
  40. Manary MP Boulding W Staelin R Glickman S The Patient Experience and Health Outcomes The New England Journal of Medicine 2013 368 3 201 203 10.1056/NEJMp1211775
  41. Nuño-Solinís R [Development and implementation of the Chronicity Strategy for the Basque Country (Spain): lessons learned] Gaceta Sanitaria 2016 10.1016/j.gaceta.2016.03.011 [in Spanish]
  42. Staniszewska S Churchill N Patients’ experiences in the UK: Future strategic directions Patient Experience Journal 2014 1 1 140 143 Available from: http://pxjournal.org/journal/vol1/iss1/18
  43. Coulter A Locock L Ziebland S Calabrese J Collecting data on patient experience is not enough: they must be used to improve care BMJ 2014 348 10.1136/bmj.g2225
  44. Department of Health The NHS Outcomes Framework 2015/2016 2014 Dec London NHS [cited 2016 31 Jan]. Available from: https://www.gov.uk/government/publications/nhs-outcomes-framework-2015-to-2016
DOI: https://doi.org/10.5334/ijic.2443 | Journal eISSN: 1568-4156
Language: English
Submitted on: Feb 6, 2016
Accepted on: Aug 16, 2016
Published on: Aug 31, 2016
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year

© 2016 José Joaquín Mira, Roberto Nuño-Solinís, Mercedes Guilabert-Mora, Olga Solas-Gaspar, Paloma Fernández-Cano, María Asunción González-Mestre, Joan Carlos Contel, Marío del Río-Cámara, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.