Skip to main content
Have a personal or library account? Click to login
Extending “Continuity of Care” to include the Contribution of Family Carers Cover

Extending “Continuity of Care” to include the Contribution of Family Carers

Open Access
|Jun 2017

References

  1. Levine C Halper D Peist A Gould DA Bridging troubled waters: family caregivers, transitions, and long-term care Health Affairs 2010 29 1 116 124 10.1377/hlthaff.2009.0520
  2. Donelan K Hill CA Hoffman C Scoles K Feldman PH Levine C Gould D Challenged to care: Informal caregivers in a changing health system Health Affairs 2002 21 4 222 231 10.1377/hlthaff.21.4.222
  3. Dossa A Bokhour B Hoenig H Care transitions from the hospital to home for patients with mobility impairments: patient and family caregiver experiences Rehabilitation Nursing 2012 37 6 277 285 10.1002/rnj.047
  4. Bookman A Harrington M Family Caregivers: A Shadow Workforce in the Geriatric Health Care System? Journal of Health Politics, Policy and Law 2007 32 6 1005 1041 10.1215/03616878-2007-040
  5. Knauss J Moyer D The role of advocacy in our adventure with Alzheimer’s Dementia 2006 5 1 67 72 10.1177/1471301206059755
  6. Legault A Ducharme F Advocating for a Parent with Dementia in a Long-term Care Facility The Process Experienced by Daughters Journal of Family Nursing 2009 15 2 198 219 10.1177/1074840709332929
  7. Neufeld A Harrison MJ Stewart M Hughes K Advocacy of Women Family Caregivers: Response to Nonsupportive Interactions With Professionals Qualitative Health Research 2008 18 3 301 310 10.1177/1049732307313768
  8. Rea H Kenealy T Sheridan N Gorman D Invisible care: do we need a Code of Rights to protect family and informal carers? New Zealand Medical Journal 2010 123 5 6 DOI: http://hdl.handle.net/2292/28696
  9. Clemmer SJ Ward-Griffin C Forbes D Family Members Providing Home-Based Palliative Care to Older Adults: The Enactment of Multiple Roles Canadian Journal on Aging/La Revue Canadienne Du Vieillissement 2008 27 03 267 283 10.3138/cja.27.3.285
  10. Goodwin N Dixon A Anderson G Wodchis W Providing integrated care for older people with complex needs: lessons from seven international case studies London: The King’s Fund 2014 201 4
  11. Peek CJ Baird MA Coleman E Primary care for patient complexity, not only disease Families, Systems, & Health 2009 27 4 287 10.1037/a0018048
  12. Arksey H Hirst M Unpaid carers’ access to and use of primary care services Primary Health Care Research and Development 2005 6 02 101 116 10.1191/1463423605pc230oa
  13. Ward-Griffin C Bol N Hay K Dashnay I Relationships Between Families and Registered Nurses in Long-Term-Care Facilities: A Critical Analysis Analyse critique de la relation entre familles et infirmières autorisées dans les centres de soins de longue durée CJNR (Canadian Journal of Nursing Research) 2003 35 4 150 174
  14. Ham C The ten characteristics of the high-performing chronic care system Health economics, policy and law 2010 5 01 71 90 10.1017/S1744133109990120
  15. Kodner DL Spreeuwenberg C Integrated care: meaning, logic, applications, and implications–a discussion paper International journal of integrated care 2002 2 4 10.5334/ijic.67
  16. Sheridan NF Kenealy TW Kidd JD Schmidt-Busby JI Hand JE Raphael DL McKillop AM Rea HH Patients’ engagement in primary care: powerlessness and compounding jeopardy. A qualitative study Health Expectations 2015 18 1 32 43 10.1111/hex.12006
  17. Hertzberg A Ekman S-L Axelsson K “Relatives are a resource, but…”: Registered Nurses’ views and experiences of relatives of residents in nursing homes Journal of Clinical Nursing 2003 12 3 431 441 10.1046/j.1365-2702.2003.00761.x
  18. Morrow EM Nicholson C Carer engagement in the hospital care of older people: an integrative literature review Journal of Older People Nursing 2016 10.1111/opn.12117
  19. Whittier S Scharlach A Dal Santo TS Availability of caregiver support services: Implications for implementation of the National Family Caregiver Support Program Journal of aging & social policy 2005 17 1 45 62 10.1300/J031v17n01_03
  20. Haggerty JL Reid RJ Freeman GK Starfield BH Adair CE McKendry R Continuity of care: a multidisciplinary review BMJ 2003 327 7425 1219 1221 10.1136/bmj.327.7425.1219
  21. Ashton T Implementing integrated models of care: the importance of the macro-level context International Journal of Integrated Care 2015 15 6 10.5334/ijic.2247
  22. Sheridan N Kenealy T Kuluski K McKillop A Parsons J Wong-Cornall C Are patient and carer experiences mirrored in the Practice Reviews of Self-Management Support (PRISMS) provider taxonomy? International Journal of Integrated Care 2016 in press
  23. Ministry of Health Tatau Kura Tangata: Health of Older Maori Chart Book 2011 2011 Wellington Ministry of Health
  24. Given CW Given B Stommel M Collins C King S Franklin S The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments Research in nursing & health 1992 15 4 271 283 10.1002/nur.4770150406
  25. Dilworth-Anderson P Brummett BH Goodwin P Williams SW Williams RB Siegler IC Effect of race on cultural justifications for caregiving The Journals of Gerontology Series B: Psychological Sciences and Social Sciences 2005 60 5 S257 S262 10.1093/geronb/60.5.S257
  26. Katz S Assessing self-maintenance: activities of daily living, mobility, and instrumental activities of daily living Journal of the American Geriatrics Society 1983 31 12 721 727 10.1111/j.1532-5415.1983.tb03391.x
  27. Kingi TK Durie M “Hua Oranga” A Maori Measure of Mental Health Outcome 2000
  28. Kara E Gibbons V Kidd J Blundell R Turner K Johnstone W Developing a Kaupapa Maori framework for Whanau Ora AlterNative: An International Journal of Indigenous Peoples 2011 7 2 100 10.1177/117718011100700203
  29. Haggerty JL Pineault R Beaulieu M-D Brunelle Y Gauthier J Goulet F Rodrigue J Practice Features Associated With Patient-Reported Accessibility, Continuity, and Coordination of Primary Health Care The Annals of Family Medicine 2008 6 2 116 123 10.1370/afm.802
  30. Jörgensen D Parsons M Jacobs S Arksey H The New Zealand informal caregivers and their unmet needs The New Zealand Medical Journal 2010 123 1317
  31. Guthrie B Saultz JW Freeman GK Haggerty JL Continuity of care matters BMJ 2008 337 a867 10.1136/bmj.a867
  32. Haggerty JL Roberge D Freeman GK Beaulieu C Bréton M Validation of a generic measure of continuity of care: when patients encounter several clinicians The Annals of Family Medicine 2012 10 5 443 451 10.1370/afm.1378
  33. Saultz JW Defining and measuring interpersonal continuity of care The Annals of Family Medicine 2003 1 3 134 143 10.1370/afm.23
DOI: https://doi.org/10.5334/ijic.2545 | Journal eISSN: 1568-4156
Language: English
Submitted on: Oct 30, 2016
Accepted on: Apr 24, 2017
Published on: Jun 27, 2017
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year

© 2017 Cecilia Wong-Cornall, John Parsons, Nicolette Sheridan, Timothy Kenealy, Allie Peckham, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.