“Dealing with the Hospital has Become too Difficult for Us to Do Alone” – Developing an Integrated Care Program for Children with Medical Complexity (CMC)
References
- Glader, L, Plews-Ogan, J and Agrawal, R. Children with medical complexity: Creating a framework for care based on the International Classification of Functioning, Disability and Health. Developmental Medicine & Child Neurology, 2016; 58(11): 1116–1123. DOI: 10.1111/dmcn.13201
- Cohen, E, Kuo, DZ, Agrawal, R, Berry, JG, Bhagat, SK, Simon, TD and Srivastava, R. Children with medical complexity: An emerging population for clinical and research initiatives. Pediatrics, 2011; 127(3): 529–538. DOI: 10.1542/peds.2010-0910
- Olsen, L, Saunders, RS and Yong, PL.
Owens MK. (2010). Costs of uncoordinated care. Washington DC: National Academy Press . In: The healthcare imperative: lowering costs and improving outcomes: workshop series summary, 2010: 109–140. National Academies Press. - Coller, RJ, Nelson, BB, Sklansky, DJ, Saenz, AA, Klitzner, TS, Lerner, CF and Chung, PJ. Preventing hospitalizations in children with medical complexity: A systematic review. Pediatrics, 2014; 134(6): e1628–1647. DOI: 10.1542/peds.2014-1956
- Peter, S, Chaney, G, Zappia, T, Van Veldhuisen, C, Pereira, S and Santamaria, N. Care coordination for children with complex care needs significantly reduces hospital utilization. J Spec Pediatr Nurs., 2011; 16(4): 305–312. DOI: 10.1111/j.1744-6155.2011.00303.x
- Miller, A, Condin, C, McKellin, W, Shaw, N, Klassen, A and Sheps, S. Continuity of care for children with complex chronic health conditions: Parents’ perspectives. BMC Health Serv Res., 2009; 9(1): 242. DOI: 10.1186/1472-6963-9-242
- NSW Health. NSW Health Integrated Care Strategy. Available at:
http://www.health.nsw.gov.au/integratedcare/Pages/Integrated-Care-Strategy.aspx accessed September 2017; 2017. - Cohen, E, Bruce-Barrett, C, Kingsnorth, S, Keilty, K, Cooper, A and Daub, S. Complex Care. Improving quality outcomes requires a strategic approach: Integrated Complex Care Model: Lesson learned from Interorganisational Partnership. Healthcare Quarterly, 2011; 14.
- Healthpathways. Western Sydney Health Pathways. Available at:
https://westernsydney.healthpathways.org.au . 2017. - Boston Children’s Hospital and Harvard University. The Pediatric Integrated Care Survey User Manual. Available from:
http://www.childrenshospital.org/care-coordination-curriculum/care-coordination-measurement . 2015. - Cohen, E, Jovcevska, V, Kuo, DZ and Mahant, S. Hospital-Based Comprehensive Care Programs for Children With Special Health Care Needs: A Systematic Review. Archives of Pediatrics & Adolescent Medicine, 2011; 165(6): 554–561. DOI: 10.1001/archpediatrics.2011.74
- Cohen, E, Lacombe-Duncan, A, Spalding, K, MacInnis, J, Nicholas, D, Narayanan, UG, Gordon, M, Margolis, I and Friedman, JN. Integrated complex care coordination for children with medical complexity: A mixed-methods evaluation of tertiary care-community collaboration. BMC Health Serv Res., 2012; 12: 366. DOI: 10.1186/1472-6963-12-366
- Homer, CJ, Klatka, K, Romm, D, Kuhlthau, K, Bloom, S, Newacheck, P, Van Cleave, J and Perrin, JM. A review of the evidence for the medical home for children with special health care needs. Pediatrics, 2008; 122(4): e922–937. DOI: 10.1542/peds.2007-3762
- Hillis, R, Brenner, M, Larkin, P, Cawley, D and Connolly, M. The Role of Care Coordinator for Children with Complex Care Needs: A Systematic Review. International journal of integrated care, 2016; 16(2).
- BACCH. The meaning of “integrated care” for children and families in the UK British Association for Community Child Health Position Statement. Available at:
http://www.bacch.org.uk/policy/documents/IntegrationBACCHposition_web.pdf accessed November 2016; 2012.
DOI: https://doi.org/10.5334/ijic.3953 | Journal eISSN: 1568-4156
Language: English
Submitted on: Dec 12, 2017
Accepted on: Aug 15, 2018
Published on: Sep 5, 2018
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year
© 2018 Lisa Altman, Christie Breen, Joanne Ging, Sara Burrett, Tim Hoffmann, Emma Dickins, Kristen Brown, Yvonne Zurynski, Susan Woolfenden, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.