Table 1
Search terms and combination.
| Domain of the SPICE scheme [29] | Search terms |
|---|---|
| Setting | community/home/outpatient/domicil*/resident*/long-term |
| Perspective (Patient group) | tracheostom*/tracheotom*/mechanic*/artific*/invasiv* AND respirat*/ventilat* |
| Intervention | inter-/multi-disciplinary, inter-/multi-professional, cross-/inter-/multi-sectoral AND care cooperat*/coordinat*/team ANDconcept/project/plan/pathway/support/service/complex intervention, case/care management, managed/integrated/continu* care |
| Comparison | Not specified |
| Evaluation | Not specified |
Figure 1
PRISMA flow chart of the systematic literature search.
Table 2
Concepts identified.
| No. | Country | Region | Programme title | Model of care reported |
|---|---|---|---|---|
| 1 | AUS | Victoria | Complex Care Hub | NS |
| 2 | AUS | Queensland, New South Wales | Connected Care Program | Shared Care |
| 3 | AUS | Victoria | Victorian Respiratory Support Service (VRSS) | NS |
| 4 | AUS | Victoria, Tasmania, New South Wales | Tracheostomy Review and Management Service (TRAMS) | NS |
| S | CA | Ontario | Champlain Complex Care Program | Medical Home |
| 6 | CA | Toronto, Southern Ontario | Complex Care Program | Medical Home/Shared Care |
| 7 | CA | British Columbia | Provincial Respiratory Outreach Program (PROP) | NS |
| 8 | CA | Quebec | Quebec National Program for Home Ventilatory Assistance (NPHVA) | NS |
| 9 | CA | South West Ontario | Chronic Mechanical Ventilation Program | Systems Model of Integrated Care |
| 10 | CA | Toronto | Long-Term Ventilation Centre of Excellence (LTVCOE) | NS |
| 11 | ES | Barcelona | Plataforma de Respuesta Integral a Niños Crónicos con Elevada dependencia (PRINCEP) | Case Management |
| 12 | FR | France | Fédération Association Nationale pour le Traitement à Domicile de l’ Insuffisance Respiratoire Chronique (ANTADIR) | Statutory |
| 13 | USA | Michigan | Assisted Ventilation Clinic (AVC) | Case Management |
| 14 | USA | North Carolina | Child Health Accountable Care Collaborative (CHACC) | Medical Home |
| 15 | USA | Illinois | Continuity of Care Program lowa (COC) | Medical Home |
| 16 | USA | Michigan | Pediatric Home Ventilator Program | NS |
| 17 | USA | Pennsylvania | Technology Assisted Children’s Home Program (TACHP) | NS |
| 18 | USA | Pennsylvania | Home Ventilator Program, Children’s Hospital of Philadelphia (CHOP) | NS |
| 19 | USA | Wisconsin, Illinois | Special Needs Program (SNP) | Medical Home |
| 20 | USA | Midwest | Tracheostomy and Home Ventilator Program | NS |
| 21 | USA | New England | Critical Care, Anesthesia, Perioperative Extension (CAPE) and Home Ventilator Program | supplemented Medical Home |
| 22 | USA | Massachusetts | Pediatric Alliance for Coordinated Care (PACC) | Medical Home |
| 23 | USA | Indiana | Home Ventilation Program | NS |
| 24 | USA | Maryland | Rare and Expensive Case Management (REM) Program | Case Management |
| 25 | USA | Minnesota | Special Needs Program (SNP) University of Minnesota (U of M) | Shared Care, Medical Home Centre |
[i] AUS – Australia; CA – Canada; FR – France; ES – Spain; USA – United States of America.
Table 3
Concept characteristics.
