Table 1
Participant characteristics.
| DESCRIPTOR | n(%) |
|---|---|
| Providers (n = 18) | |
| Role | |
| Advisor (executive, patient council) | 3 (17%) |
| Implementer | 7 (39%) |
| Care coordinator | 5 (28%) |
| Frontline service provider | 3 (17%) |
| Program Developer (involved in initial design) | |
| Yes | 11 (61%) |
| No | 7 (39%) |
| Gender | |
| Female | 16 (89%) |
| Male | 2 (11%) |
| Caregivers and Patient (n = 18) | |
| Relationship to Patient | |
| Spouse or ex-spouse | 3 (17%) |
| Sibling | 2 (11%) |
| Child | 12 (67%) |
| Patient | 1 (6%) |
| Age | Average: 63.3 years (SD: 9.3) |
| Median: 62.5 years | |
| Range: 49–82 years | |
| Gender | |
| Female | 11 (61%) |
| Male | 7 (39%) |
| Main language used at home | |
| English | 11 (61%) |
| Russian | 4 (22%) |
| Polish | 1 (6%) |
| Arabic | 1 (6%) |
| Mandarin | 1 (6%) |
| Fiscal year enrolled in NYCARES | |
| NYCARES 1.0 (2020–2021) | 8 (47%) |
| NYCARES 2.0 (2021–2022) | 9 (53%) |