Learning from a 7 year long Public Patient Involvement (PPI) journey with the rare disease patient organisation 22q Ireland
Authors
Fiona McNicholas
Children's Health Ireland (CHI) at Crumlin, Dublin, Ireland/St John of God's Dublin, Ireland
DOI: https://doi.org/10.5334/ijic.9495 | Journal eISSN: 1568-4156
Language: English
Page range: 671 - 671
Published on: Apr 9, 2025
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year
© 2025 Lorna Kerin, Elisha Minihan, Fiona Crotty, Anne Lawlor, Emma Brady, Fiona McNicholas, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.